Recrutement de participants aux études

Objectifs de l'étude : L’Équipe de INGAUGE à l’Université du Manitoba, dirigé par Dre Roberta Woodgate, mène présentement une étude intitulée « Faire avancer les soins centrés sur le patient pour les jeunes personnes vivant avec de la douleur chronique ». L’étude a pour but de comprendre et préciser les expériences, les besoins, et priorités des jeunes personnes qui vivent avec la douleur chronique, et de cocréer et évaluer des produits d’application de connaissances basées sur l’art.

Admissibilité et participation : Nous cherchons présentement des jeunes personnes entre 12 et 34 ans qui vivent avec de la douleur chronique (récurrente ou persistante qui à duré au moins 3 mois) qui désirent participer à l’étude. Il s’agit de participation dans une entrevue individuelle (e.g., par Zoom), une activité de photographie, et la création de produits de recherche basées dans l’arts.  L’information partagé lors de l’étude sera privée et confidentielle (c'est-à-dire que personne à l’extérieur de l’équipe de recherche ne saura si vous avez participé et/ou ce que vous avez dit) et les résultats aideront à savoir comment appuyer les jeunes personnes qui vivent avec la douleur chronique.  

La participation à l’étude ne vous fera courir aucun risque et s’il y a des activités ou questions qui vous rendent inconfortable, vous pouvez terminer votre participation à l’étude à n’importe quel temps sans conséquences. Chaque étape ou activité de l’étude prendra environs une à deux heures de temps, et vous allez recevoir un honoraire (carte-cadeaux) pour vous remercier pour votre temps. L’étude est présentement en déroulement et durera jusqu’au milieu de l’année 2024. Les participants qui habitent n’importe-où au Canada sont bienvenue. 

Détails du contact : Si la participation à l’étude vous intéresse, ou si vous désirez recevoir plus d’information avant de décider de participer, s.v.p. contacter ingauge@umanitoba.ca ou 204-481-4994. Si vous envoyer un courriel, veuillez s.v.p. indiquer que vous êtes intéressé à l’étude portant sur la douleur chronique. 

Project Title: An Examination of the Well-Being Paradox Among Older Adults Living with Chronic Pain

Study Investigators: Amara Kohlert (Principal Researcher) and Dr. Natasha Galant (Supervisor) 

Research Host Institution: University of Regina 

Study Aims: Amara Kohlert (Principal Researcher) and Dr. Natasha Gallant (Supervisor) at the University of Regina are currently recruiting participants for a study on chronic pain and well-being. The survey is looking to learn more about about well-being and chronic pain in adults aged 60 years and older. The goal is to better understand the elevated well-being experienced by older adults despite their levels of chronic pain, the impact of certain coping factors, and if age of onset of chronic pain influences levels of well-being. 

Eligibility Criteria: To be eligible to participate in this survey, participants must be: 

• 60 years of age or older
• Living with chronic pain (i.e., pain that persists or recurs for 3+ months and causes significant emotional distress or functional impairment)
• Residing in Canada.

Participation: Participation in this study would involve 1 online survey session of approximately 20 minutes. As a participant in this study, you would be asked to complete a series of anonymous self-report questionnaires. In appreciation for your time, you can elect to enter into a draw for a chance to win 1 of 5 $50 Amazon gift cards.

Click on the following link if you are interested in participating: https://bit.ly/3DX1S6S

Confidentiality Protocol: The study’s researchers and supervisor will be the only persons with access to the data and these persons will employ the strictest rules of anonymity and confidentiality. Electronic data will be kept in password-protected databases on password-protected computers. A Participant Consent Form is provided within the above-linked survey and is also available for download. 

Contact Information: If you have any questions, or would like more information about the study, please contact the Researchers or Supervisor at arcresearch@uregina.ca or (306) 585-4219.

Recruitment Stat and End Date: January 1, 2023 to August 31, 2023 

Project Title: Development of a new preference-based quality of life measure for osteoarthritis

Principal Investigator: Dr. Ayse Kuspinar, Associate Professor

Research Host Institution: McMaster University

Purpose of study: This research study is developing a quality-of-life measure for people affected by osteoarthritis (OA). The aim of this study is to understand what is important to people with OA in everyday life and develop an item pool for a new measure. 

Eligibility Criteria: The researchers are inviting all individuals aged 50 years and older who are diagnosed with hip or knee OA to participate. Participants can live anywhere in Canada.

What does the study involve: 
•    Participation in an online survey
•    The survey will ask you questions about your experience living with OA 
•    Total time 15 minutes

If you are interested, please click this survey link to read more about the study and to participate. If you have any questions, please email qualityofliferesearch@outlook.com. 

Confidentiality Protocol: All Information collected will be kept confidential and will be protected. Participation in this research is completely voluntary.

Recruitment Start and End Date: February 1, 2023 to December 1, 2023

This study has been reviewed by the Hamilton Integrated Research Ethics Board under Project #14895.

Project Title: Investigation of Light Therapy in the treatment of pain caused by osteoarthritis of the knee: A one-way crossover trial

Principal Investigators: Dr. Jason McDougall and Dr. Karim Mukhida

Research Host Institutions: Nova Scotia Health and Dalhousie University

Study Aims: LED Light therapy has been shown to improve some painful conditions. The purpose of this research is to better understand whether light therapy helps reduce pain caused by osteoarthritis of the knee. 

Eligibility Criteria: To be eligible for this study, participants must:

• Have a diagnosis of osteoarthritis 

• Speak English

• ​Reside in Nova Scotia 

Participation: We are testing to see if light therapy reduces the pain caused by osteoarthritis. Within this study, participants will be asked to:  

• Use LED lights in your home for 1-2 hours per day for 20 weeks.

• Complete surveys. You do not have to answer any questions you don't want to.

The length of this study for participants is approximately 26 weeks. The entire study is expected to take about 18 months to complete and the results should be known in 2 years. 

Potential Risks & Benefits: 

• Possible benefits include pain relief. The results of this study may help us think of better ways in the future to help other people with osteoarthritis pain.

• There have been no side effects reported with the use of this intervention. Researchers will continue to watch closely for side effects. 

• There is a small risk of breach out confidentiality. We use several strategies to protect your records. 

Confidentiality Protocol: Protecting your privacy is an important part of this study and every effort to protect your privacy will be made. However, complete privacy cannot be guaranteed. For example, the principal investigator may be required by law to allow access to research records. Your family doctor will be told that you are taking part in this study. If the results of this study are presented to the public, nobody will be able to tell that you were in the study.

If you decide to participate in this study, the research team will collect personal health information from you and your health record.  The research team will collect and use only the information they need for this study and to judge the safety and usefulness of the study treatment.  

Please note a consent form will be provided to all participants, which contains further details regarding the study's privacy and confidentiality protocols. 

Contact Information: If you are interested in participating in this study, please contact the acting research group designate, Sharon Amey, by phone at (902) 499-9167 or by email at LightStudy@nshealth.ca for more informtation. 

Recruitment Start and End Dates: March 14, 2023 to August 31, 2023. 

Titre : Les Origines Perçues du Douleur Chronique : Un questionnaire traversale des Canadiens qui vivent avec la Douleur Chronique

Chercheurs Principales : Dr Jason Busse et Dr Andrew Jin

Institution : L’Université McMaster 

But : Le but de cette étude est de meilleur comprendre l’étiologie du douleur chronique au Canada pour la prévenir et gérer effectivement.

Participation : Les participants seront invités à remplir un questionnaire en ligne anonyme sur la douleur chronique. Le questionnaire ne devrait pas prendre plus de 25 minutes à remplir. Il n’y aucun risque médical pour participer dans cette étude. Cette étude devrait prendre 3 mois à terminer. 

Éligibilité :

Vous êtes éligible à participer dans ce questionnaire si vous :

1. avez 18 ans ou plus;

2. vivez avec la douleur chronique pour au moins 3 mois, et;

3. habitez au Canada. 

Protocole de confidentialité :
Si vous décidiez à participer dans cette étude, l’équipe de cherche collectera seulement les données pertinentes. L’étude est complétement anonyme. Toutes les réponses seront encodées et gardées en sécurité à l’Université McMaster et seront seulement accessible aux chercheurs principaux. Pour le but d’assurer que la surveillance appropriée de l’étude de recherche est fournie, c’est possible que les représentants de Hamilton Integrated REB, cette institution et sites affiliés peuvent consulter vos données de recherches originaux (identifiables) et dossiers médicaux pour assurer que l’étude suit les bonnes lois/directives. Si les résultats de cette étude sont publiés, votre identité restera confidentielle. C’est prévu que l’information recueilli pendant cette étude serait utilisée dans des analyses et partagés avec la communauté scientifique. Même si la probabilité que quelqu’un vous identifierait de l’étude est très petite, cette probabilité ne pourrait jamais être éliminé. 

Cliquez sur le lien ci-dessous si vous souhaitez participer : 
Participater

Coordonnées :  
Nom : Dr. Andrew Jin
Courriel : jina7@mcmaster.ca 

Dates de début et de fin de recrutement :
5 mai 2023 - 31 mai 2023

Principal investigators: Debbie Feldman, PhD, Université de Montréal, Sasha Bernatsky, MD PhD, Université McGill, Linda Woodhouse, PhD, University of Alberta 

Project description and objectives: Our project, funded by the Canadian Initiative for Outcomes in Rheumatology Care (CIORA) of the Canadian Rheumatology Association focuses on the identification process by physiotherapists of newly affected patients with  inflammatory arthritis and the consequences of rapid referral of these patients to rheumatology care. The purpose of the focus groups is to explore how to facilitate appropriate referrals in rheumatology and optimize the care of a patient with inflammatory arthritis. The focus group will be composed of 4-8 patients and the main goal is to help optimize patient care in inflammatory arthritis. 

If you are interested in further details about this research, please contact Tatiana Rodriguez, Tatiana.orozco.rodriguez@gmail.com. 

Read the Invitation

Project Title: User Requirements for an In-Home, Augmented Reality, Physical Rehabilitation Tool for an Aging Population

Study Investigators: Dr. Afolasade Fakolade (Principal Investigator) and Dr. Manuela Kunz (Co-Investigator) 

Host Institution: Queen's University 

Purpose: The aim of the study is to explore how an augmented reality tool can be used to support in-home rehabilitation for older adults who have undergone a total joint replacement procedure. 

Participation: You will be asked to complete a brief online survey (approximately 20-minutes) if you agree to participate in this study. The survey will ask you to respond to demographic and background questions as well a provide your email address so you can be contacted to participate in an online focus group. The online focus group discussions will engage 3-4 stakeholders per group. You will be invited to join one stakeholder focus group discussion (approximately 90-minutes, over Zoom) based on your expertise in one or more of the following areas: 

• Lived experience as an older adult with total joint replacement

• Lived experience providing care for older adults with joint replacement

During the focus group, you will be asked to share your views about essential features and requirements to be included in an augmented reality tool that you can use at home to achieve your full exercise potential after a joint replacement. 

You can learn more about this study by watching the following video: 
Learn More

In appreciation for your time, you will receive a $20 online gift card for participating in the study. 

Eligibility: 
The study investigators are looking for: 

1. Adults who:
   Are at least 65 years old and have undergone a total joint replacement procedure 

2. Family caregivers who: 
   Provide unpaid assistance (e.g., physical, emotional, or informational help) for a family member or close friend with a total joint replacement.

All participants must have access to an internet-enabled computer, tablet, or smart-phone, and be able to participate in one online focus group in English. 

Confidentiality Protocols:
All responses will be kepy private and confidential. Information and data collected through this study will be coded to maintain confidentiality. Further information on the study's benefits, risks, and privacy policies can be directed to a.fakolade@queensu.ca. 

Contact Information: 
If you are interested in participating in this study, please contact: 
careco@queensu.ca 

Recruitment Start and End Dates: 
May 5, 2023 - September 30, 2023